SCIENCE STUDIES CORE SEMINAR, WINTER 1996 HIGR 239, PHIL 209B, SOC G255B KNOWLEDGE, PRACTICE, AND VALUES IN BIOMEDICINE Professors Gerald Doppelt and Steven Epstein Tuesdays, 9:00-12:00, H&SS 3009 Schedule of Readings: Jan 9: Introduction PART ONE: THE CONSTRUCTION OF MEDICAL OBJECTS AND SUBJECTS Jan 16: Concepts of Disease and Illness Christopher Boorse, "On the Distinction Between Disease and Illness," in Contemporary Issues in Bioethics, ed. Tom L. Beauchamp and LeRoy Walters (Belmont: Wadsworth, 1982), 64-73. H. Tristram Englehardt, Jr., "The Roles of Values in the Discovery of Illnesses, Diseases, and Disorders," in Contemporary Issues in Bioethics, ed. Tom L. Beauchamp and LeRoy Walters (Belmont: Wadsworth, 1982), 73-75. Peter Sedgwick, Psycho Politics (London: Pluto Press, 1982), 28-42. Peter Wright and Andrew Treacher, "Introduction," in The Problem of Medical Knowledge, ed. P. Wright and A. Treacher (Edinburgh: Edinburgh Univ. Press, 1982), 1-22. E.J. Yoxen, "Constructing Genetic Diseases," in The Problem of Medical Knowledge, ed. P. Wright and A. Treacher (Edinburgh: Edinburgh Univ. Press, 1982), 144-161. Jan 23: Language and Metaphor in the Understanding of Medicine Wilfrid Sellars, chapter 1 ("Philosophy and the Scientific Image of Man") in Science, Perception and Reality (London: Routledge). Emily Martin, Flexible Bodies: Tracking Immunity in American Culture from the Days of Polio to the Age of AIDS (Boston: Beacon Press, 1994), 44-112. Setha M. Low, "Medical Practice in Response to a Folk Illness: The Diagnosis and Treatment of Nervios in Costa Rica," in Biomedicine Examined, ed. M. Lock and D.R. Gordon (Dordrecht: Kluwer, 1988): 415-438. Susan Sontag, Illness as Metaphor (New York: Farrar, Straus & Giroux, 1978), 3-4, 43- 71. Nancy Scheper-Hughes and Margaret Lock, "The Message in the Bottle: Illness and the Micropolitics of Resistance," Journal of Psychohistory 18, no. 4 (Spring 1991): 409-432. Jan 30: Medicalized Bodies and Selves David Armstrong, Political Anatomy of the Body (Cambridge, England: Cambridge Univ. Press, 1983), 1-18. Nancy Fraser, "Foucault on Modern Power," Praxis International 1 (1981). Stefan Hirschauer, "The Manufacture of Bodies in Surgery," Social Studies of Science 21, no. 2 (May 1991): 279-319. Charis Cussins, "Kinship Making in an Infertility Clinic," in Cyborg Babies, eds. J. Dumit and R. Davis-Floyd, forthcoming. Michael Kelly, "Self, Identity, and Radical Surgery," Sociology of Health & Illness 14, no. 3 (1992): 390-415. PART TWO: BIOMEDICINE BETWEEN "ART" AND "SCIENCE" Feb 6: Clinical Judgment NOTE: By this date, students should have turned in a paper topic and discussed it with Jerry and/or Steve. Eliot Freidson, chapter 8 ("The Clinical Mentality") in Profession of Medicine: A Study of the Sociology of Applied Knowledge (Chicago: Univ. of Chicago Press, 1988), 158-184. Deborah R. Gordon, "Clinical Science and Clinical Expertise: Changing Boundaries Between Art and Science in Medicine," in Biomedicine Examined, ed. M. Lock and D.R. Gordon (Dordrecht: Kluwer Academic Publishing, 1988), 257-295. Carl Hempel, chapters 2 and 5 of Philosophy of Natural Science (Englewood Cliffs, NJ: Prentice-Hall, 1966). Paul Moser, introduction to Rationality in Action (Cambridge, England: Cambridge Univ. Press, 1990). Marc Berg, "The Construction of Medical Disposals: Medical Sociology and Medical Problem Solving in Clinical Practice," Sociology of Health & Illness 14, no. 2 (1992): 151-180. Theresa Montini and Kathleen Slobin, "Tensions Between Good Science and Good Practice: Lagging Behind and Leapfrogging Ahead Along the Cancer Care Continuum," Research in the Sociology of Health Care 9 (1991): 127-140. Feb 13: Medical Ethics in Social Context Alan H. Goldman, The Moral Foundations of Professional Ethics (Savage, MD: Rowman & Littlefield, 1980), 156-229. David J. Rothman, chapter 11 of Strangers at the Bedside (New York: Basic Books, 1991), 222-246. Ren‚e R. Anspach, chapters 2-3 of Deciding Who Lives (Berkeley: Univ. of California Press, 1993). Barbara A. Koenig, "The Technological Imperative in Medical Practice," in Biomedicine Examined, ed. M. Lock and D.R. Gordon (Dordrecht: Kluwer Academic Publishing, 1988), 456-496. PART THREE: BIOMEDICINE BETWEEN "SYSTEM" AND "LIFEWORLD" Feb 20: Authority, Rationalization, and Resistance Paul Starr, The Social Transformation of American Medicine (New York: Basic Books, 1982), 9-17. Jrgen Habermas, "Technology and Science as Ideology," in Toward a Rational Society (Boston: Beacon Press, 1970), 81-122. Graham Scambler, "Habermas and the Power of Medical Expertise," in Sociological Theory and Medical Sociology, ed. Graham Scambler (London: Tavistock, 1987), 165-193. Ivan Illich, chapter 2 of Medical Nemesis (New York: Pantheon, 1976). Feb 27: Medicine, Social Control, and the Negotiation of Meaning Talcott Parsons, The Social System (New York: Free Press, 1951), 436-454. Barbara and John Ehrenreich, "Medicine and Social Control," in The Cultural Crisis of Modern Medicine, ed. John Ehrenreich (New York: Monthly Review Press, 1978), 39-79. Sue Fisher, chapters 5-6 in Nursing Wounds (New Brunswick, NJ: Rutgers Univ. Press, 1995), 110-172. Mar 5: Encounters Between Worlds Steven Epstein, "The Construction of Lay Expertise: AIDS Activism and the Forging of Credibility in the Reform of Clinical Trials," Science, Technology, & Human Values 20, no. 4 (Autumn 1995): 408-437. Andrew Feenberg, "On Being a Human Subject: Interest and Obligation in the Experimental Treatment of Incurable Disease," in Alternative Modernity (Berkeley: Univ. of California Press, 1995). Joan H. Fujimura, "The Molecular Biological Bandwagon in Cancer Research: Where Social Worlds Meet," Social Problems 35, no. 3 (June 1988): 261-83. Hilary Arksey, "Expert and Lay Participation in the Construction of Medical Knowledge," Sociology of Health & Illness 16, no. 4 (1994): 448-468. Mar 12: Health, Risk, and Knowledge Controversies in Public Arenas **PAPERS DUE** James C. Petersen and Gerald E. Markle, "Expansion of Conflict in Cancer Controversies," Research in Social Movements, Conflict and Change 4 (1981): 151-169. Evelleen Richards, "The Politics of Therapeutic Evaluation: The Vitamic C and Cancer Controversy," Social Studies of Science vol. 18 (1988): 653-701. Deborah Lupton, chapter 3 ("Taming Uncertainty") in The Imperatives of Health (London: Sage, 1995), 77-105. Norman Daniels, chapter 4 ("AIDS and Insurability: Ethical Issues in Underwriting") in Seeking Fair Treatment (Oxford: Oxford Univ. Press, 1995).